Yesterday she had her echo, another port/central line placed, another spinal tap with IT methotrexate (chemo put in her spinal fluid), and a bone marrow aspiration. Had to stay over a little for more IV fluids and pain control.
Things we know:
- Her blast cells in the CNS (cancer cells in spinal fluid) did not respond to the methotrexate last week.
-She is neutropenic, her white count is low, ANC is 50.
-She is sore, tired, hurts everywhere.
-We are transferring from Lurie's to University of Iowa Children's. We have an appointment this coming Tuesday 7/24/18. UI is an excellent place to be for BMT.
Things we don't know:
-The bone marrow sample was unsatisfactory in her oncologist's opinion. It was found to be hypocellular. This could be due to a whole variety of reasons. But since we are transferring to UI, she has consulted and is collaborating with the onc team there. We are anticipating a repeat bone marrow aspiration AND an additional biopsy.
-The bone marrow sample has been sent to John Hopkin's as well.
-We still don't know if she's had a BM relapse.
So much is uncertain. I'm constantly checking my email, checking my phone.
I'm sorry I don't have more to update.
Just keep us in your prayers, thoughts, wishes, spells, chants, trances, meditations.... you know cover all bases.
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